Antibodies

So not much has been going on here, just waiting for results to been seen by consultant and/an appointment to discuss results.

Today I received a letter  to say the infliximab treatment is no longer work as a lot of antibodies had been found in my bloods. It seems I have to switch to Humira which has to be injected at home.

I didn't really want this treatment, not cos I have to inject that's not something to bother me, but I kind of just didn't want my home to feel too clinical, probably sounds stupid but that's just how I feel!!

I will wait to see when this gets sorted out and what advice/information I will be given. Not feeling very informed at the moment and like I don't have much choice 😐

Oh yeah I did go to Lego land at the weekend and my insides where very well behaved!! Had a great time there would like to go again when the kids are older so we can go on the rides 😄

#goodandbaddays

Here's my pictures of good and bad days! Crohn's and colitis UK are running this campaign to help raise funds!!

MRI scan

So just had a scan of my small bowel, the preparation drink consumption is really the longest part! You have to drink it slowly over about an hour. It's neither pleasant or horrible, it makes my teeth feel odd and when it hit the bowel prepare to run!!!
Laying in the machine is uncomfortable as boobs and arms seem to get in the way. But 20 minutes of breathing in, holding in then relaxing as instructed isn't too bad if I get some answers!!

Throw back Thursday

So I thought I dig out my photo of my sticture, to do so I had to rammage around in my appointments folder. I found quite a few letters in there. I can't even begin to think how many appointments I have attended in total over the last 18 months.
On top of that the infliximab has meant countless trips to the Gp due to infections and mouth abcese. I got so fed up with feeling consumed by it all I went to the doctors, I informed them I had had enough of it, I was knackered and sick of it all, so the sent me to 'LIFT' which meant attending a weekly appointment to help LIFT my mood!!! Umm not helping!!!
At least the infusions cleared that sticture up tho because that pain was next level.

Exercise.

So I failed on the coffee ban, but I did manage a short run. It's been months since I had the energy to get out and exercise.
Got to say it feel good to get my body moving but it's also good mentally so get some fresh air and time by myself.

Will power

So last night I decided to give up coffee as I drink loads and I'm sure it's not good for my stomach!! I ask my other half to inforce the ban and help me stay away from it.
This morning started well 1st drink of the day I had a cup of decaf tea, then some hot lime juice which was vile but still at least it wasn't contraband.

Inflectra treatment

Today was my 10th infusion, the 1st 8 where infliximab but the Nhs swapped to the cheaper brand inflectra.
Today I was unsure weather or not to have the treatment as I doesn't seem to be working, after speaking to the lovely nursing staff in the medical day care unit, decided to go ahead and wait to till I see my Consultant before coming of it completely
As it was my 10th treatment I only had to sit for 30 mins for the infusion to be completed, bit of a shame as missed the free lunch!!!