Feeling awful

Today I feel awful, probably no more unwell then I have been for weeks if not months, but I have just vomited from coughing, I have had this problem for weeks alone and was told by my GP to give it time and be paticent. Until it shifts I can't get the flu inject and I may not be able to start my new drugs.
I have also had very sore eyes for 8 weeks on and off, I have spoke to the GP twice about it and nothing has really happened, they have given drops which gave some relief for the 1st day but that has now wore off.
I also suffer with sore skin in my private area which is embarrassing and extremely uncomfortable, nothing seems to help that area! I don't feel comfortable talking to my consultant about this issue but I think I will have to next time I see him.
I have also woke up to 2 mouth ulcers, so top to tail all feels broken. The result of all this is me feeling AWFUL!!!!

Antibodies

So not much has been going on here, just waiting for results to been seen by consultant and/an appointment to discuss results.

Today I received a letter  to say the infliximab treatment is no longer work as a lot of antibodies had been found in my bloods. It seems I have to switch to Humira which has to be injected at home.

I didn't really want this treatment, not cos I have to inject that's not something to bother me, but I kind of just didn't want my home to feel too clinical, probably sounds stupid but that's just how I feel!!

I will wait to see when this gets sorted out and what advice/information I will be given. Not feeling very informed at the moment and like I don't have much choice 😐

Oh yeah I did go to Lego land at the weekend and my insides where very well behaved!! Had a great time there would like to go again when the kids are older so we can go on the rides 😄

#goodandbaddays

Here's my pictures of good and bad days! Crohn's and colitis UK are running this campaign to help raise funds!!

MRI scan

So just had a scan of my small bowel, the preparation drink consumption is really the longest part! You have to drink it slowly over about an hour. It's neither pleasant or horrible, it makes my teeth feel odd and when it hit the bowel prepare to run!!!
Laying in the machine is uncomfortable as boobs and arms seem to get in the way. But 20 minutes of breathing in, holding in then relaxing as instructed isn't too bad if I get some answers!!

Throw back Thursday

So I thought I dig out my photo of my sticture, to do so I had to rammage around in my appointments folder. I found quite a few letters in there. I can't even begin to think how many appointments I have attended in total over the last 18 months.
On top of that the infliximab has meant countless trips to the Gp due to infections and mouth abcese. I got so fed up with feeling consumed by it all I went to the doctors, I informed them I had had enough of it, I was knackered and sick of it all, so the sent me to 'LIFT' which meant attending a weekly appointment to help LIFT my mood!!! Umm not helping!!!
At least the infusions cleared that sticture up tho because that pain was next level.

Exercise.

So I failed on the coffee ban, but I did manage a short run. It's been months since I had the energy to get out and exercise.
Got to say it feel good to get my body moving but it's also good mentally so get some fresh air and time by myself.

Will power

So last night I decided to give up coffee as I drink loads and I'm sure it's not good for my stomach!! I ask my other half to inforce the ban and help me stay away from it.
This morning started well 1st drink of the day I had a cup of decaf tea, then some hot lime juice which was vile but still at least it wasn't contraband.